She shares mindful strategies for self-care through online courses at Simple Wild Free. The medical community can bring more attention to this disease. I can't imagine that he would not rather be here with us though," says Victor. Dont restrain them or put anything in their mouth. Which words would you like them to know? Keep up to date on our projects through our socials/website 3. Seoul. icon: Matt Sturniolo user: My name/Sturniolo header: The Sturniolo Triplets bio: Age, My favorite people link: Cameron Boyce Foundation location: Upside Down pinned: Don't have one. Our first thought was to start a foundation that continued the things that Cameron was doing, which was homeless [support] and water initiatives and just general helping people and being the good guy that he was, says Victor Boyce. But theres a certain power young people have to urge change. The Cameron Boyce Foundation wants to change these misconceptions. (2019). Q: For those who might not know it yet, what is The Cameron Boyce Foundation? "And Cameron was always very, very excited for me to find my own identity, because we became creative around the same time, and we sort of came up with the ideas to act on our own.. Q: You also have been supporting projects about clean water and some other environmental causes, why do you think young people should act right now to keep saving our planet? SUDEP can happen to anyone with epilepsy, although certain individuals are at a greater risk. In 2017, Boyce received an Emmy Award with Disney XD for Outstanding Promotional Announcement in conjunction with his participation in their series Timeless HeroesBe Inspired, honoring Black History Month in which he appeared alongside his grandmother Jo Ann Boyce. The fact is epilepsy is the most common neurological disease that we know the least about. Cameron Boyce. Our work will never bring Cameron back, but we know he would be proud of what we have accomplished in a short amount of time. We can't undo his passing," says Victor. The Cameron Boyce Foundation is on a mission to empower others who suffer from seizures by providing valuable information, research and resources, and hopefully, one day, end epilepsy and SUDEP. As a society, our mental health has been pushed to the breaking point and I think the best thing we can do during this pandemic is creating time to take care of ourselves and our mental health. "And it's just so nice to see the people who I'm close to be successful in the things that they want to do, and hopefully have an impact on the fields that they're going in. He began his career as a child actor, appearing in the 2008 films Mirrors and Eagle Eye, along with the comedy film Grown Ups (2010) and its 2013 sequel. "I think he would expect us to do this, honestly. But it can be difficult to stay motivated in the cause when gun violence is a nationwide epidemic. ", "That's the position that I'm in. Meanwhile, less than half of a percent goes to epilepsy. How? So its been not just a business or a charitable thing, its a passion and love thing.. Cameron Boyceactor, dancer, and singer of Disney Channel famewas a talented and lively artist as well as a humanitarian. I act as one of the many advisors to the foundation who help guide where TCBF is going and how were helping. Fletcher, opposite Kathryn Hahn; and was the lead in the indie film RUNT. Whitney R, et al. Q: Let us focus on one main topic: The Cameron Boyce Foundation; what can you tell us about your direct participation in it? What can you tell us about it and the importance of keeping sharing the everlasting legacy of Cameron Boyce? The Cameron Boyce Foundation recently launched a powerful campaign to end gun violence called "Wielding Peace ." Supporters are encouraged to take a photograph wielding any item, as if it were a gun, in support of the organization's mission to end gun violence. [Its] saying, This is my tool. 1. Being well-informed is powerful. In 2018, Cameron launched a campaign on his birthday that raised more than $27,000 to build two freshwater wells in Swaziland. We work with larger foundations to help us find the best researchers, epileptologists, scientists and doctors. In addition, it is important for teenagers to understand that everyone goes through hard and confusing times when they are young. Donate or check out the TCBF merch 2. When you visit this site, it may store or retrieve information on your browser, mostly in the form of cookies. Cameron Boyce Foundation Is this your nonprofit? Lastly, we need more young medical students to choose to go into the field of epilepsy as a specialty under neurology. Cameron Boyce was a humanitarian with a voice that had the power to elicit change. To spread more awareness about epilepsy, harness our platform and engage Camerons fanbase and young people to talk about epilepsy and bring it out of the shadows. Papacostas SS. It is a statement piece meant to inspire young people who he influenced. This is the least we could do to honor his legacy., He would give up his life to save others, adds Libby Boyce. And we did not and still do not hide our activism, our care for others, and our appreciation of diversity.. The fact is epilepsy is the most common neurological disease that we know the least about. Ready to channel your culinary creativity courtesy of Ross Edgleys award-winning Worlds Fittest Cookbook? Our website is engaging and encourages interaction from our visitors. We are confidentthat working together, we can make a significantdifference in the lives of people living with epilepsy., As we enter the second year of this partnership, CURE Epilepsy is so grateful to The Cameron Boyce Foundation for their continued commitment to funding critically needed epilepsy research, said Beth Dean, CEO, CURE Epilepsy. We have also established an online forum for people living with epilepsy to connect with others and share resources. Even teenagers? Cameron Boyce's loved ones are continuing to keep his legacy alive close to three years after his unexpected death. So, TCBF is funding programs that get us closer to Camerons passions and wishes to better the world. We had known he had seizures, but epilepsy wasnt really a conversation, and wed never heard of SUDEP," Maya says. In addition, the foundation aims to raise awareness and funds for epilepsy research. When I was young, I had a journal that I wrote poetry in I still look at it today and think back on how far I have come. causes Cameron was passionate about. Through funding The CURE Epilepsy Cameron Boyce SUDEP Research Award, The Cameron Boyce Foundation recognizes the promise of this work, and it reinforces their resolve to honor Camerons legacy by supporting epilepsy research, awareness, and education. The Cameron Boyce Foundation (est. My parents taught me to be giving, Maya tells Teen Vogue, recognizing our privilege and using it for good., Those efforts started from an early age. SUDEP was responsible for Cameron Boyces death in 2019. Until that point, I was acting because I had fun doing it, but I quickly realized its a bit bigger than that, and representation in film and television plays a pivotal role in our society. You can find level 4 epilepsy centers through the NAEC directory. We were clueless, completely clueless. All Rights Reserved. 2019) honors the legacy of Cameron Boyce by aiming to cure epilepsy through funding research, education and awareness campaigns while still supporting causes that were important to Cameron. Lastly, one of the biggest misconceptions about epilepsy is that it is rare. Though Cameron was all about giving back, Victor and Libby admit their son would probably have mixed emotions knowing a gala was being held in his honor. It is the. You can also share this pamphlet from TCBF with friends and loved ones of a person with epilepsy. (2022). He never took an acting class, but his career took off, with more than 40 credits in his lifetime. He took some pictures of himself with peaceful objects and wielded them in place of a gun. "It does help with the grieving. It was something that was a reaction more than a plan because we were so taken aback by his passing, says Victor, who segued from being his sons manager and business partner to spearheading the foundation full time, including managing a growing social media platform (1.3 million Instagram followers). We need to push the needle forward. To be frank, we dont know why there is not more attention on epilepsy because it is so very common. Click here to subscribe. ", "He'd be embarrassed that this attention is given to him at all because he was such a giver," adds Libby. We treasure one another and we will love them unconditionally forever. 2019) honors the legacy of Cameron Boyce by aiming to cure epilepsy through funding research, education, and awareness campaigns while still supporting causes that were important to Cameron. Types of epilepsy are classified by the types of seizures involved. Im going to see if I want to finish college; that's a question I need to ask myself. Boyce, who died in July 2019, would have turned 21 on Thursday.To pay homage to Boyce's legacy on the milestone date, the Cameron Boyce Foundation has teamed up with his former Descendants costar . Our family is vegan because it is healthy and we became educated about the meat industry which was an eye-opener. 2023 The Hollywood Reporter, LLC. Since its inception over 20 years ago, CURE Epilepsy has raised over $78 million to fund innovative studies to advance its goal of no seizures and no side effects. Were dedicated to making a difference because what happened to us shouldnt have happened, and certainly going forward, we dont want it to happen to anybody else., Part of that process has pushed them in front of cameras and tape recorders talking about their son to the media, an experience they were not used to prior to Camerons death. As the non-profit leader in epilepsy research, CURE Epilepsy is unwavering in its commitment to fund scientific study and accelerate research to reach our goal a world without epilepsy. Visit. This is something we feel that has been entrusted to us for whatever reason, and were not going to waste that, says Victor Boyce. Do what you love and stay happy., The leaders of tomorrow are fierce and unafraid.. Sudden Unexpected Death in Epilepsy (SUDEP). 1M Followers, 167 Following, 304 Posts - See Instagram photos and videos from The Cameron Boyce Foundation (@thecameronboycefoundation) But as she navigates the uneasy waters of early adulthood, she's fighting for so much outside of herself too. Last medically reviewed on November 30, 2022. Since then, she has worked as a writer-reporter on the Human Interest team and an associate editor on the TV team. We have family members who are doctors who never heard of SUDEP, says Victor Boyce. More information can be found on TCBF's website. We are thankful for everyone that contributed and celebrated with us. Because of this, Cameron was honored with the Pioneering Spirit Award at Thirst Projects ninth annual gala the highest award bestowed upon an individual by the organization. His grandmother, Jo Ann Boyce, was a civil rights pioneer who was one of the 12 Black students who became known as the Clinton 12 for being the first integrated into Clinton High School in Tennessee in 1956. CreditsPhotographer: Drew EscrivaPhoto Assistant: Ali PaydarStylist: Savannah WhiteHair Stylist: Candice BirnsMakeup Artist: Sophie HaigProduction: Michelle RitortoArt Director: Emily ZirimisFashion Director: Tahirah HairstonVisual Editor: Louisiana Gelpi. What keeps me positive, and what keeps my whole family motivated, is this new generation of kids who are trying to change the direction of [gun violence].. For this, we are so grateful. Frequently Asked Questions. Its important for us to stay vigilant when it comes to protecting our planet and creating new sustainable means of living that are accessible to everyone in our community. "But, every year on his birthday, he didn't want presents. But a melatonin overdose can disrupt your sleep-wake cycle and actually make it harder for you to, Seizures are changes in your brains electrical activity. We know that we are the voice of Cameron now, and we take that very seriously., That is why on Instagram, Libby says, they often post messages in to address everything Cameron cared deeply about from dismantling systemic racism and promoting sustainability to climate change and clean water. She wrote on her Instagram: "Dear Cam, you changed my world. And I was their age, so we would just all play together. than to take a few more steps to determine if the cardiac, pulmonary or drowning event was secondary to epilepsy. He became best known for his work in Disneys pop culture phenomenon, the Descendants franchise. ", "Cameron would've been 23 years old this year. SUDEP is the leading cause of epilepsy related mortality. We initially started The Cameron Boyce Foundation to honor our sons legacy. Q: For me, particularly, it is somehow hard to ask this question because everyone who knows or has followed the work of your beloved son, Cameron Boyce, has felt the instant rush of joy, love, and energy he still spreads in this world. Dr. Auerbachs innovative study will use analytical tools that are well accepted in the field of cardiology, but new to epilepsy and SUDEP, to identify epilepsy patient populations at risk of cardiac-related SUDEP. We use our voices to spread awareness as far and wide as possible. The foundation created in his honor is just as multi-faceted as he was and strives to put forth every effort to use the best resources possible to help others and make the world a better place. The Cameron Boyce Foundation held its first-ever inaugural fundraising event, Cam For A Cause: A Fundraiser for The Cameron Boyce Foundation To End Epilepsy, on May 18, 2022. His family roots and genuine love of life played a big part in his interactions and personality. We are also working on some tools for school teachers to use to help young people express themselves in positive ways. You need a specialist, adds Victor Boyce. "It sort of became a family passion project to try and keep his legacy alive.. Cameron Boyce was actively involved in many philanthropic efforts, and was particularly involved in . Even though most of my friends are going into creative fields, the ones who aren't are also kicking butt, taking names, and it's just really, really it's motivating for me.. Dove Cameron, Sofia Carson, Kenny Ortega and more are paying tribute to their late friend and Descendants actor Cameron Boyce . This novel research is designed with the goal of developing a comprehensive SUDEP risk assessment tool to help identify people with epilepsy who are at risk for SUDEP, so that measures can be put in place to prevent SUDEP from occurring. He wanted to give back and he would always do something to help others. She specifically references their work with Inner City Arts and the Actors Fund, causes aligned with the needs of the kids she used to play with and the entertainment career shes looking to pursue. Their investment is essential in helping provide a brighter future for the 65 million people worldwide living with epilepsy. in July 2019 after their son, actor Cameron Boyce, died in his sleep from an epileptic seizure due to SUDEP (Sudden Unexpected Death in Epilepsy Patients). A doctor handed me a pamphlet, like something youd pick up on a bus. Known earliest from 1186, the county of Moers was an independent principality within the Holy Roman Empire.. During the Eighty Years' War it was alternately captured by Spanish and Dutch troops, as it bordered the Upper Quarter of Guelders.During the war it finally fell to Maurice of Orange.As it was separated from the Dutch Republic by Spanish Upper Guelders it did not become an integral part . The Cameron Boyce Foundation is honored to continue our partnership with CURE Epilepsy and to explore ways to work together to improve epilepsy awareness, accuracy of treatments, and to ultimately cure epilepsy! said Libby Boyce. TCBF also offers a searchable map on their website. Our website services, content, and products are for informational purposes only. Due to its location, this route is very well suited as a hiking trip from Dsseldorf. Cameron was extraordinary beyond measure, and The Cameron Boyce Foundation (TCBF) celebrates his life and legacy by continuing to work on the causes that were dear to Camerons heart and by raising awareness and working towards a cure for Epilepsy.Born and raised in Los Angeles, CA, and dubbed an old soul by many who encountered him, its no surprise that Cameron possessed an all-encompassing appreciation for the arts. Everything Im passionate about is a testament to someone who taught me why I should care, Cameron once said. About The Cameron Boyce Foundation: The Cameron Boyce Foundation (est. Dont offer food, eater, or medication until theyre fully awake. whos my account dedicated to? Beautiful hiking trail through the Ohligser Heide nature reserve near Dsseldorf, North Rhine-Westphalia This hiking trail runs through the idyllic Ohligser Heide and guarantees absolute enjoyment of nature. When he died, not many people knew he had epilepsy. They can also contribute to NO bullying environments and be kind to others. But theyre learning as they go and leading with our hearts, Libby says. So it sort of became a family passion project to try and keep his legacy alive.. Currently studying contemporary theater, she's at a crucial point in life, coming into her own and determining what actually fits her not just following a scripted course. Would you find a way to thank them enough? TCBF also advocates to arm friends and family with the information they need to provide support during emergency situations and beyond. He said, Ive never seen a U-Haul behind a hearse. Cameron then put his spin on it, adding, We all go. I think it comes down to something as simple as this: if you have a voice, use it for good. Muscle and Health participates in affiliate marketing programs, which means we may get paid commissions on editorially chosen products purchased through our links to retailer sites. Q: How can other young people get involved and collaborate with The Cameron Boyce Foundation? In addition, they can volunteer in their own community to helpothers. The event is expected to be attended by dozens of Cameron's closest friends and colleagues, including his Descendants costars Sofia Carson and Dove Cameron, friend Nolan Gould, Jessie costars Debby Ryan and Peyton List, and Descendants director Kenny Ortega, among others. The Cam for a Cause Gala is being held on May 18 to help raise awareness and find a cure for epilepsy and SUDEP, which tragically caused the young actor's death in July 2019, Joelle Goldstein is the Staff Editor of TV for PEOPLE Digital. The Cameron Boyce Foundation provides young people artistic and creative outlets as alternatives to violence and negativity and uses resources and philanthropy for positive change in the world. I don't need to use violence or hurtful words. Nevertheless, how have you experienced the love others have for him? The "Boyfriend" singer opened up about Boyce's lasting impact. We just lived our life.. We spoke to Victor and Libby about how they started the Cameron Boyce Foundation and its impact on those with Epilepsy. We fund experts who are on the cutting edge of epilepsy research. The Troubles Show How a Society Slides Into Violence. Our experts continually monitor the health and wellness space, and we update our articles when new information becomes available. My daughters the same way, explains Victor, referring to the couples other child, Maya. It devastated our lives, but we're not gone. Epilepsy is not readily visible. Because Cameron was an empath with an especially charitable streak, Maya says continuing his legacy through the familys charity is a sort of catharsis a tribute to her brother, but also a way to channel her own passions and upbringing. And what can you tell us about Camerons legacy nowadays? He lived his life through this lens and TCBF will continue in that spirit with Cameron as our leader and compass. We are very aware that humans play a big role and greatly impact our environment in a negative way. Cameron became a staunch advocate for the Thirst Project. His family and his close-knit village of friends are all involved in seeing this through. The Cameron Boyce Foundation and the Epilepsy Foundation have joined forces to create K(NO)W SUDEP NOW! Thats why were stressing the importance of wearing a mask; we believe that everyone should be doing their part. Q: Most teenagers find it difficult to express to others they feel like needing help, they are experiencing mental issues or they have a medical condition. Prior to joining PEOPLE, Joelle was employed at The Hollywood Reporter, where she was co-nominated at the 2019 GLAAD Media Awards for Outstanding Magazine Article for feature cover story. They have trouble breathing or are choking. Additionally, the event will include an emotional performance byAlvin Ailey dancer Meagan King. Wielding Peace was a campaign Cameron started that aimed to encourage young people to find creative and peaceful outlets as alternatives to negativity and violence. Only together can we cure epilepsy and end SUDEP. The Hollywood Reporter is a part of Penske Media Corporation. His love of performing began in a dance studio, which then transitioned him into print ads, commercials, and television and film.At twenty years of age, Cameron had already become a veteran to show business. "We're really excited about this opportunity to really show what we're doing and to share our stories and help us move forward in our battle against epilepsy. "It's definitely something I'm sure he would be proud of. Epilepsy is the fourth most common neurological disorder behind migraine, stroke, and Alzheimers disease but receives significantly less federal funding. The pandemic has been challenging for everyone to say the least, and the only way out of this is by working together and wearing a mask. Through research there is hope. 2019) honors the legacy of Cameron Boyce by aiming to cure epilepsy through funding research, education, and awareness campaigns while still supporting causes that were important to Cameron. Q: So many have struggled to keep their spirits up during this trying time. After realizing what the parents of Cameron Boyce and two of his closest friends have said, and as a person who has been experiencing through the years how people continually have shown the love they still have for him, I feel like every word I could say will fall short if we pay attention to actions of those who have been supporting his dreams and social concerns during the last two years; thus, let me just say this: keep abreast of every new project of The Cameron Boyce Foundation, collaborate, follow its social networks and try your best to be kind to yourself; also, do good to others and take care of the planet because there is no better way to share Cameron Boyces legacy of love. Victor Boyce, 58, recalls that plans took shape for the foundation as tears were still falling in response to the devastating loss. Kasey Kitchen, a foundation board member and Camerons former publicist, emphasizes that Maya is a huge light and a tremendous driving force behind the heart of the foundation, and that her voice is very intertwined in the guidance of [her parents] choices., Cameron was so, so proud of her, Kitchen says. Formed days after his death, the foundation celebrated its first anniversary July 15 and is ready to announce its largest gift yet: a $100,000 grant to Citizens United for Research in Epilepsy (CURE Epilepsy) to establish the Cameron Boyce Taking Flight Award. Were beyond grateful for the continued support from people all over the world and are hopeful for whats to come this year.. We're marching toward fascism," Rep. Gloria Johnson tells, What to Pack for Coachella, According to Teen Vogue Editors. Tickets for Cam For A Cause: A Fundraiser for The Cameron Boyce Foundation To End Epilepsy are on sale now. Yes! The Cameron Boyce Foundation (est. To continue saving young lives! Cameron, diagnosed at 17, was still early in his journey living with the condition, and hed suffered only five seizures before the one that took his life. He threw out this really profound thing, Cameron said, prefacing the quote he discovered watching the Oscar winners interviews on YouTube. Adds Victor: Without the team that we have, we wouldnt be anywhere close to where we are right now. Carrying the torch has been the Cameron Boyce Foundation, a nonprofit launched by his parents Victor and Libby Boyce and dedicated to causes he was passionate about, like ending gun violence and curing the neurological disorder that claimed his life. In honor of our son Cameron, who lost his life due to SUDEP, The Cameron Boyce Foundation and our donors are happy to fund Dr. David Auerbachs research with The CURE Epilepsy Cameron Boyce SUDEP Research Award. Lots and lots of therapy. Established in 2019 by Victor and Libby Boyce, TCBF was the grieving parents' effort to honor their late son's philanthropic spirit, while also hoping to fund epilepsy research. This year, TCBF will be hosting the immersive gala at SOHO Warehouse in downtown Los Angeles. After their son died in his sleep from an epileptic seizure, Victor and Libby started the Cameron Boyce Foundation (TCBF) we chat with them about how its impacting the lives of those with epilepsy, Photographer: Larry Hirshowitz (images of Libby & Victor) About The Cameron Boyce Foundation: The Cameron Boyce Foundation (est. We have some exciting projects coming this year that will allow us to further our efforts in creating awareness for SUDEP, as well as ending gun violence. "We've made great strides with the foundation as far as getting connected and being impactful and doing grants, but we've never been able to do an in-person event because COVID has hammered us since the beginning," Cameron's father, Victor Boyce, tells PEOPLE.

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